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Two Year Update Since Second Treatment

 

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23-08-2018 - This week marks two years since my second Adult Stem Cell Treatment, in Thailand. This year marks twelve years since the onset of my symptoms.

I am doing reasonably well, with regards to my walking ability, muscle strength, balance, and overall energy.

Comparing the two year mark since both treatments in 2011, and 2016, I can safely say there has been a definite slowdown in my deterioration. I would estimate at least 30-40%.

I am still able to walk short distances, without assistance, with good balance for a short period. I cannot express my gratitude enough, and my amazement for this wonderful gift! Each step I take is an absolute joy. I don’t take it for granted, not for a minute.

The muscle strength in my lower region is fair. I can lift medium to heavy objects, for a short while. I can do light exercises, for a short while.My ability to sit up straight is fair. I can sit up straight for longer periods, mostly while being active or mobile. I can do grocery shopping by myself, and do chores such as doing laundry, washing dishes, and prepare food on the stove.

I find that I can sit up straight for much longer periods while I am being active, as opposed to simply sitting up straight and being immobile. My concentration is fair. I can work on my laptop for 30-40 minutes per day. My ability to focus while reading has improved.

My energy levels have increased, my sleep has improved, and I can put my head in a more elevated position while resting (I used to rest with no pillow; this allows for better blood flow to the head, so I don’t experience dizziness).

My energy levels fluctuate greatly. No day is the same. On certain days I can do certain activities for a longer period, other days I can’t, and require rest.

Despite my progress, I remain confined to my bed for most of the time. I still require a significant amount of rest each day. I need to rest PLENTY after each physical activity, even for something as simple as going grocery shopping, or going out to visit a friend. I cannot do physical activities for a continued period.

Going into town, to visit hospitals and institutions remains a major challenge and a stressful time, for it requires waiting, and sitting up straight for a good length of time. I still make use of my crutches, and my wheelchair for when I need to walk long distances.

With the help of therapy, and an exercise program, I am able to keep my energy levels, muscle strength, balance, and concentration to an optimum level. Through therapy, great work has also been done in reducing the build-up of pressure in my frontal lobe. Therapy remains an indispensable part of my recovery. I am deeply grateful for it.

I require more stem cell treatment, more frequently. I am making progress, but I am still far from living a normal life.

I have raised a total of R47 000 out of R185 000 for my third Adult Stem Cell treatment, which will be administered by the SA Stem Cell Institute, in Parys, Free State. I have raised a total of R9 500 out of R50 000 for my new business, which would pay for my future treatments.

I wish to thank my family and friends for their love, encouragement and continued support. You make life so much easier. Thank you, I love you all so much.

I am deeply grateful for every contribution to my fundraising efforts. I wish to thank each and every person who has made the journey to recover a little easier. A very special thank you to the artistic community of South Africa, for their incredible support, by donating beautiful works of art to my fundraising efforts. I am very thankful to all of you!

Thanks to all of you!

Love,
Riaan

23 August 2018.

 

Stem Cell Treatment price update

03-08-2018 - With the recent increase in VAT, unfortunately the cost of my stem cell treatment at the SA Stem Cell Institute has now risen, too. I now require R185 000, for 8 packets of Adipose Derived Adult Stem Cells. R47 000 has been raised thus far! 

 

Donation - Thank You

29-06-2018 - I would like to express a sincere THANK YOU to Wilrich Schroeder, for his kind and generous donation of R5000 to the fundraising efforts. Thank you so much, Wilrich! Our fundraising total now stands at R35 400!

 

Work of Art Auction - Anet Du Toit

 

Anet Du Toit Resolute

09-05-2018 - A warm and big THANK YOU to artist Anet Du Toit, for painting this gorgeous piece of art, and auctioning it off on Facebook to raise a total of R2800 for my fundraising efforts. Thank you for all your efforts, and patience, Anet!! Thank you to everyone who participated in the auction, and to Jannie and Hanlie Odendaal for the winning bid, and their support. Jannie and Hanlie donated the full amount of the artwork, R3400! Thank you so much!

View more of Anet's incredible work:

https://anet-artist.tumblr.com/

https://www.facebook.com/anetdutoit

 

 

 

18-Month update since treatment.

 

 

 

20-02-2018 - It’s been 18 months since my second round of Adult Stem Cell Treatment in Thailand. I am still able to walk short distances. My overall muscle strength and coordination are good.

My ability to sit up straight is good. My energy levels are fair. I can do some physical work, but in shorts bursts, and I require ample rest afterwards. Too much activity results in dizziness and poor balance.

My concentration has improved to such an extent that I am able to watch movies and videos intermittently on my laptop. I have not been able to do this since 2013. I sleep well; I struggled with insomnia prior to treatment. Overall I feel okay. I rest plenty.

I benefit greatly from my therapy sessions. They assist with muscle coordination and muscle fatigue, restore my energy levels, and aid tremendously in restoring brain fatigue, my levels of concentration, and bring tremendous relief to the build-up of pressure in my frontal lobe.

There is a definite deterioration in my condition. I would say during the past 18 months I’ve deteriorated by 10% overall. It is unpleasant, but normal at this stage. I am seeing the same level of decline that I’d felt following my first treatment in 2011, and during the onset of my illness in 2007.

I struggle with screenwriting; it requires immense concentration, more so than watching a video. All that concentration takes enormous strain on the frontal lobe, resulting in painful and intense pressure in that area.

I’m beginning to suffer from oxygen deprivation, on the occasion, especially following excessive physical activity and long hours on the PC.

I continue to raise funds for my third treatment, and my business endeavour that I wish to start soon, so that I could finance my own treatments.

The goal is to have 8 rounds of Adult Stem Cells once a year for three years, followed by 8 rounds every two years. This would no doubt provide me with a full life and push my strength levels up to 90% and upwards.

Thank you so, so much to each and everyone for your continued support, love, and encouragement. I couldn’t have made it this far without you. THANK YOU! I am confident that 2018 will be a great year. Here’s to hope!

Love, Riaan.

 

Tenda Tora Holiday Raffle Winner

01-09-2017 - We have a winner!

Congratulations to Sarah Scott, who is the winner of the holiday raffle. Enjoy the holiday, Sarah. I wish to thank EVERYONE who has bought a ticket, and supported me. Thanks you guys are wonderful. We've sold a total of 103 tickets, raising a total of R5150!! 

 

 

12-Month update since treatment.

22-08-2017 - It has been 12 months since my second round of Adult Stem Cell Treatment at the Better Being Hospital, in Bangkok, Thailand. The results and improvement are very much on par with the first treatment I had received in 2011, in China. The stem cells have peaked. There are no new improvements to report. All of my symptoms have improved, though deterioration is very much present. I am seeing the same sort of deterioration I had experienced following my first round of treatments.

My walking ability and balance are still good. It is evident that I need more stem cells, and more often. I would say 8 packets of Adult Stem Cells once a year would keep me up to a reasonable level of strength and energy. My strength and energy is around 30-40%, at present. The treatment was definitely worth it. Read more about it HERE. Here is a short video that shows my balance and walking ability:

 

 

R800 Donation from Lizette Farinha

06-05-2017 - A kind and big THANK YOU to Lizette Farinha for taking her time to raise R800 for my fundraising efforts. Thank you, Lizette, we deeply appreciate you!

 

pretoria-fm-logo-retinaPretoria FM - Discussion on Ataxia

26-04-2017 - Thank you so much to Marianne Breytenbach and all the wonderful people at Pretoria FM. We had a fantastic day, talking in great length about Ataxia with Marianne on her medical show. I will try and upload the show to this page soon. Baie dankie aan Tannie Karien Kotze dat sy haar dag beskikbaar gestel het om my na Pretoria FM se ateljee in die ooste van Pretoria te neem.

 

pretoria-fm-logo-retina

Pretoria FM - Discussion on Ataxia - to air Wednesday 26 April 2017 at 

20:10 on www.pretoriafm.co.za 

23-04-2017 - I will be doing an in-depth discussion on Ataxia with Pretoria FM (104.2) radio show host Marianne Breytenbach. She hosts Pretoria FM's medical show. The show will air on Wednesday 26 April at 20:10. We will be talking about Ataxia, the illness I was diagnosed with in 2011, an illness thousands of people suffer from. Be sure to tune in and pass on the news to someone you know who suffers from this illness. You can also stream live via Pretoria FM's website www.pretoriafm.co.za   

Fundraising for my new business via Back-a-buddy

back a buddy logo

In addition to the RAFFLE, I have also started to fundraise on the BACK-A-BUDDY platform for my new business. I am starting a woodworking company, manufacturing and selling coffins and caskets, to pay for my stem cell treatments.

I have come to realize that I would need permanent financing for my stem cell treatments. Fundraising is hard work, and takes time. The only solution is to start  a business of my own. I've spent ample time researching this new project, and it looks very promising. I have already acquired two retired carpenters, who have decades of woodworking experience under their belt, to assist me. I've also acquired the location for our business.

All we need is the funding for the start-up costs R35 000 (US$2500), which would provide us our Power tools and the raw material for our first few batches. 

 

Six Month Treatment Update - 12 March 2017

 

12-03-2017 - Here is a short video update that shows my current condition, following six months after my stem cell treatment in Thailand.

 

 

news sa stem cellsStem Cell Treatment opens its doors in South Africa

07-02-2017 - Great News! Stem Cell Treatment has finally arrived in South Africa. The SA Stem Cell Institute, which focuses on various stem cell treatments incuding Mecenchymal Stem Cells (Adult Stem Cells derived from fat), has opened its doors in the beautiful town of Parys, in the Free State.

The institute, headed by Dr. Walter Bell, works in collaboration with US Stemcell, a stem cell company based in California.

I have been accepted for treatment at this facility. My treatment will consist of 8 packets of Mecenchymal Stem Cells (Adult Stem Cells) derived from Adipose Tissue (fat), along with various other therapies. The treatment costs R165 000.

 

First Donation!

01-01 2017 -I have received a R10 000 donation for my third round of Adult Stem Cell treatment! Thank you!! I wish to sincerely thank the donor, who wishes to remain anonymous. We're off to a great start!

 

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