Ataxia

Note: 23 April 2017: My friend James, who has been diagnosed with Spinocerebellar Ataxia Type 1 is currently in Thailand at the Better Being Hospital, receiving Adult Stem Cell treatment for his condition. He has set up a Facebook page, which he updates daily with news and information. We wish him all the best! You can follow his treatment here: 

https://www.facebook.com/JamesinThailand2017-1525618450813822/

 

ataxia

I was diagnosed with Ataxia in 2011, and have been suffering from its symptoms since 2007.

What is Ataxia?

Ataxia is a deterorating neurogical conditon that greatly affects a person's balance, movement and coordination.

What are its symptoms?

Poor balance, struggling to walk, poor muscle strength especially in the lower region, difficulty in swallowing, slurring of speech, fatigue, problems with sight due to difficulty controlling eye movements.

What types of Ataxia are there?

Friedreich's Ataxia, Spinocerebellar (SCA's) or Cerebellar Ataxia, Hereditary, Episodic, Gluten Ataxia, Eposodic (experiencing Ataxia in short bursts or time).

What causes Ataxia?

Ataxia can be inherited from one or both parents, prolonged exposure to toxic chemicals, alcohol abuse, head injuries or brain damage especially to the cerebellum or from a stroke, vitamin E or B12 deficiancy. Sometimes it's not possible to find the cause of Ataxia.

Is there a cure for Ataxia?

There is no know cure for Ataxia. Though there are several therapies and medicines that helps Ataxia sufferers. Physical Therapy, Occupational Therapy and Speech Therapy can assist in helping to control muscle coordination and movement, and assist with a person's speech.

Adult Stem Cell treatment has also proven to be beneficial to some Ataxia sufferers. Gluten Ataxia sufferers can possibly see relief from a Gluten-free diet. A vitamin supplement can be helpful in cases where patients suffer from a vitamin deficiancy.

 

 Ataxia Resources

The following websites are useful for information regarding Ataxia:

https://www.ataxia.org.uk/ 

http://www.livingwithataxia.org/ 

Ataxia South Africa Facebook page 

https://www.facebook.com/Ataxia-South-Africa-ataxiafriendsagmailcom-165483150143163/

Facebook Page for Spinocerebellar Ataxia Awareness and Research Support Group

https://www.facebook.com/groups/Ataxiasupportgroup/

A Very Useful and informative PDF Ataxia booklet!

https://www.ataxia.org.uk/Handlers/Download.ashx?IDMF=df6e8227-a49e-44da-910d-efc4b10ffbb7 

 

 

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